Saying Goodbye to the Circus

I’ve seen a lot of posts lately, about people’s successes, and truly I am so happy for each of you who has toiled and suffered and worked so hard for the shimmering happiness that comes with getting a longed for positive, with each week that passes that brings you closer and closer to the safety zone. I do not begrudge your obsessive pee sticks, your burgeoning belly shots and your tentative steps toward a cautious joy. I  happily root for you. I sincerely hope that each of you finds that. I hope I find that.

But the posts about resentments have always made me wonder if I was a good fit for this community. How different my belief systems are, how much older I am,  how different my experiences have been, and all the ways those experiences have shaped me.  I don’t understand how you can wish like crazy for a baby and resent someone who has been on their own path through hell, a positive pee stick or a belly shot. Even in my current state of grief, I can’t grasp this thinking. I can’t wrap my head around it. I understand it. I’ve felt those twinges as well, but I have never given in to them. I never will allow myself to.

To be completely clear, I do not judge you if these are your feelings, they are yours. But I do not understand them in the grand scheme of things.

“Coming out” on Facebook has been nice, sort of. But embarrassing and kind of humiliating. The truth is I don’t think most of my “friends” really want to read about the misery I am currently experiencing. To be honest, I’m not sure I want to continue to share it. If I am brutally honest, I think it was kind of pathetic on my part, to call attention to it. Clearly it was me reaching out into the void, looking for support. I’ve said all  along I don’t have a support system. That has never been clearer and more “in my face” than since my embryo died. I call it an embryo because by medical definition, it wasn’t a fetus yet, and I can’t handle calling it a baby.

Yesterday, someone I respect said to me, “You are right. You really don’t have anyone in your life, like a best friend or a spouse that supports you, so you can’t afford to fall apart. You’re going to have to be stronger.”

This statement made me really angry, because after all I’ve been through, I feel entitled to be weak for a minute. I feel like I deserve to be allowed to fall apart. The truth is, he was right. I have no one that will pick me up again so I AM going to have to be stronger. I am going to have to keep putting one foot in front of the other because there is no one else to do it for me. No one to share my burden.

This most recent series of posts that I’ve read and posted, has made me wonder if I have lost the purpose of this blog. When a Circus becomes a Horror Story perhaps its time for the Circus to close down.

That’s what I’m going to do.

I will not be taking the blog down. I will be reading and responding to comments, but I no longer think this is a positive means to express my feelings about my journey. I have decided I will try IVF again, but I have a lot of ugly to get through first. I think its best sorted out in private, so this will be my last post here.

I have found I really love writing, though I’m not terribly good at it,  and you will now be able to find me at The Luncheonette.

It’s still under construction, but I think it will be a more complete representation of who I am. I will be sharing a menu of my travels, photography, food, my husband and stepdaughter, things I think are funny or inspiring, books, music, movies, my observations of the world, and my immature shenanigans.

I want to thank the IF community for being kind to me, for supporting me and tolerating my sometimes controversial posts. For reading even when I’ve been a bitch or my posts have sucked. I know in my heart that the day will come for each of you when you hold your baby(s) in your arms and feel happier and more complete as women, and as part of families.  My email address is jlko@att.net if you want to stay in touch.

I hope it’s not goodbye, I hope it’s just so long, and I hope to see you at the lunch counter!

Jeanette

Uncertain

Its been a terrible week.

Time has crawled. I’ve gone over every single worst case scenario and I have no idea what comes next. If the pregnancy continues great, it means every week until week 16 will be terrifying. If it doesn’t, I am back literally at square one. I have nothing frozen, so I will starting from zero. If the embryo has died what happens then? D&C tomorrow? I have no idea.

I’ve continued my meds as requested. I’ve not bled at all. I sometimes feel more pregnant than others, and sometimes feel almost not pregnant except for sore boobs and the feeling like my uterus is full. Nausea has abated, I am still drinking a lot of water, I’m not really hungry, I’ve lost some more weight and according to Dr Google I may be experiencing something called a missed miscarriage. Or not.

Does anyone know if symptoms lesson if the embryo dies? One thing has changed this week, I can’t get through the day without a nap when I get home from work. Which means, I sleep for 2 hours and about 2 hours later go back to bed. That’s definitely new. I’m a bad sleeper on the best of days. In fact this morning I was awake at 4am. I don’t know if this means something, or if I just WANT it to mean something.

I did one brave thing this week. I came out on Facebook about my fertility struggles, and my IVF situation and mostly have had the most incredibly kind responses. In fact, on my blog this week I’ve had some unbelievably kind people leave comments that they have read for a long time, never commented before and are rooting for me. Its been amazing, and its made me cry more than once. Thank you to everyone that took the time to write to me and to say you’re hoping for me. Its appreciated since I’m not sure I have it in me now to hope for myself.

I only have a few family members on Facebook and of them, only one said anything about my news. My brothers daughter, my 21-year-old niece. I didn’t hear a word from my younger brother or his wife, so I guess it says a lot about who you can count on and who you can’t.

One thing I have noticed, is that some of my friends who are now pregnant via IVF (in person real life friends) have suddenly dropped off the face of the earth, like miscarriages are catching. That’s been…upsetting.

Overwhelmingly this week has been lonely. Hopefully tomorrow I will know, and this horrible limbo will be over.

 

 

A Call to Arms

Thank you to everyone for your comments and kind words, thank you for thinking of me, when you all have so many other things and more important worries of you own. Thank you.

After whats been a devastating weekend, one of me crying and not leaving the house and hardly getting dressed, yesterday I wrote an email to my RE asking why it is I have to carry this dead thing inside me until next week.

To clarify, at the appointment last Friday, he was not even a little encouraging, and his exact words were “Its very likely this pregnancy will end in a miscarriage” said “I’m sorry” and left the room.

It seems my email upset him. Last night he called by me and my husband and said “It’s not dead, you must finish all the medications until next week, and the chances are poor, but you still have a 30% chance of hearing a heartbeat next Friday and the pregnancy being viable. We did find a fetal pole but it was not clearly visible so we were unable to measure it, it may have been too small to show a heartbeat. Your gestational sac is about on target, and the yolk sack if perfectly placed and visible. It’s just too soon to call it.”
Which brings me to what I am about to ask from you now. Please send my little goldfish good vibes, to please grow, prayers if you believe in them, positive thoughts and I guess hope. I don’t know what the outcome will be and it may all be for nothing, however this embryo has been a fighter, and I hope it’s just a little slow and runty, that it hangs in there and continues to fight.
Thank you in advance, the support of the last few days has meant the world to me.
Jeanette

 

 

 

By Law

Its been about 6 hours since I found out that my embryo didn’t grow. I am at a crossroads. Some people are already telling me to try again, and the truth is I just don’t know if I have it in me.

I still can’t believe I have to continue meds and check again in a WEEK to verify that it’s not growing.I asked how often embryos recover from this, but no one answered my question. It means I will be carrying a dead embryo for a week. The idea makes me sick, but it seems that by law they can’t give up now, they have to wait for 8 weeks.

I did everything I could, and I know that my Dr and Molly did as well. Maybe its time to give up, and acknowledge that I just don’t deserve to be a parent. I promised myself that if I ever got pregnant, I wouldn’t complain about the PIO shots or the symptoms or anything really. I haven’t. I promised that I would only care about the health of the embryo and that I would enjoy and embrace the changes I have spent the last weeks adjusting to. I kept my promise. I haven’t complained about anything. Not morning sickness, not the shots, not doing it by myself, not anything. I haven’t felt like I have the right to. If it meant getting a chance at a healthy baby then I would endure whatever I had to.

After the appointment my husband went back to work. I’ve spent the last 6 hours alone in a dark room trying to understand. Tonight I took my meds, gave myself the shot, my husband never administered a single one, was never in the room with me and never helped me with them. Mostly I think he just didn’t want to think about them. Like every night, he wasn’t here when I did it, and when he got home, he took my stepdaughter out for dinner.
I don’t know whats going to happen to this blog. I don’t know where I am supposed to go from here. I intend to mourn my loss privately, I do not need to feed the misery so many of you feel, and are still going through. So for now, I’m signing off. Good luck to all of you. For those of you that have my email address please feel free to contact me, but for now, I can’t continue to publicly write down my feelings. Right now they are overwhelming and almost too much for me to handle.

 

Heartbeat

There was growth of the gestational sack this week, but no growth of the embryo. No fetal pole, no heartbeat. My RE wants me to continue meds, and  monitor again in a week, but the chances of miscarriage are extremely high.

 

Hounds of Love

Yesterday was my first ultrasound. It went well, according to them the embryo is measuring about 5 weeks and 5 days, so I didn’t see a heart beat or fetal pole yet, it’s just too early. Most people see it about 6 weeks 2 days. What I did see was a gestational sac and a yolk sac. According to my Dr everything is “excellent” so far. I will now get a scan every week, until I’m 10 weeks, and then I will have graduated from my clinic and will move onto an ObGyn.
I saw my regular Dr this week and I asked her for a referral to a high risk Ob because of my age. She then said “I have someone really good in mind for you, it will be a good match.” She then proceeded to tell me generally people don’t see a high risk Ob unless they have had a kidney transplant or something equally serious. But that since I was so concerned about the age thing, she would refer me and that it might take some time for my HMO to approve it. They approved it by the time I got to the car so that’s in place should I need it. He wont see me until after I’ve graduated from my clinic.

It’s weird how I expected that my symptoms would be more consistent. But they aren’t. Yesterday For the last few days I’ve been convinced that it died because my boobs were a little less sore, and I haven’t had the nausea that’s been fairly consistent “so far” I didn’t blog about my ultrasound immediately because I’ve been really anxious about it. Last night BLAM! My backs killing me, uterus feels like its stretching Stretch Armstong and saltines and water are all I can choke down. Unless you know, you’re old, chances are you don’t know what a Stretch Armstrong is, but I’m OK with that.

My most obvious pregnancy symptom is I must drink ALL. THE. WATER. I went to a work lunch yesterday and people kept looking at me funny because I didn’t eat much but I drank at least 6 glasses of water just at this one lunch alone. I drink plenty of water normally but now, I’m some sort of nauseated camel. I can smell fruit from 3 rooms away. I can smell BO from about 100 yards and blargle. It makes me gag. Husband says my nose is like a bloodhounds now.  Its been warm and windy the last few days so I opened the door to the backyard last night and I could smell the ammonia from the opossum that peed in my side yard last night.

It’s the closest I’ve ever come to having a superpower. While a lot of smells are super disgusting, it’s really weird to be able to identify random things like fruit, or opossum urine or someone who hasn’t uh bathed recently from a football field away.

Next week I hope to see the fetal pole and the heartbeat. Right now the embryo is about the size of a pea and it has a TAIL! Grow little pea, grow! But lets dial it back on the superpower. It’s really weird and sort of unnerving.

Beta #3

My first beta was 71.5. The second one was 96 hours after the first because the office is closed on Sundays and honestly, while still within normal range (31-72 hours) it was close at 69.8 hours of doubling time. So the Dr asked me to come in for a third beta. Which was this morning.

748.2

Dr was looking for about 720.0. Which now puts me at 46.41 hours to double. OMG It’s better than normal!

If you’re not sure what I’m talking about HCG is the hormone they are testing for, the “pregnancy” hormone.  At the clinic I go to, anything over 5.0 is considered pregnant. Most pregnancy tests show a positive at 15.0 or 25.0 depending on their sensitivity.

Its my humble opinion that Clear Blue Easy digitals are expensive and depressing. First Response Early Response or FRER are known to show positives very early, and I think are the pregnancy test of choice for IVFers. But you may have your own thoughts on this. Anyway, ideally you’d like your HCG to double in about 48 hours. But these numbers can vary wildly depending on who you speak with and as I said, the range is 31 to 72 hours.

Ive made it past the 1st, 2nd, 3rd, 4th hurdle for this pregnancy, there are still a lot more ahead. I’m happy, still extremely cautious but very happy.

 

 

 

Beta #2

Generally the second beta is given 48 hours after the first one. But since the  first beta was last Friday, and the clinic I go to is closed on Sundays, I was asked to come back 4 days after my first beta. Which was this morning; 181.5. I was told not to worry about it, but coming in 98.5 points lower than the Dr wanted to see? Yeah that’s concerning to me.

Since my positive pregnancy test, Ive come to realize something. It doesn’t all end with a positive and then fade to whatever baby color that represents the gender and you go on happily ever after. There is a critical path, milestones to be met, a third beta, the first ultrasound, the heartbeat, because of my age a battery of tests that will come in November and December should I make it that long.

Somewhere around the 16th week I can start to feel safe. Maybe. Which for me, means it will be 2013, before I can stop worrying.

16 weeks seems a long way away.

Which led me to thinking about children. In IVF, you worry throughout the process, you are anxious about your levels, you bodies response, your results, your ability to make follicles/eggs, their quality, if there are male factor infertility issues, you worry about Everything. You change your diet, you take supplements that make you to produce the most expensive urine in the world. You worry about the cost, the toll it takes on your relationship, the toll it takes on you as a person.

Where does it lead? It leads to the elusive (you will worry about that too) positive test, and a whole new slew of worries and anxiety. Assuming the outcome is a live birth, you will then worry about that child for the rest of your life. I guess the upside of all the disappointments and anxieties that go with IVF and infertility, is that it prepares you better than most for parenthood.

What does it mean? I means I’m going to walk through my worries and anxieties 1 step at a time. I’m going to try to not to predict the future, because it isn’t written yet, and I’m going to do everything I can to get enough rest, keep stress at bay, eat well, and have faith.

From here on out, I am stepping into the unknown. I will be grateful for every day I have with this miracle.

 

Conversations with a Crazy Person

It’s Tuesday night. 6dpt. I started getting anxious to test today. Really anxious and I had to go to Target so that made it worse. I had to get some cleaning supplies, and some vinegar, and some other stuff for my friend’s birthday party that I am helping her with. I wandered by the pregnancy test kit aisle. Put a box of 3 in my cart and then proceeded to have the stupidest conversation with myself for the next 20 minutes while meandering around Target.

“You promised you were not going to test early”

I know but I can’t help it, I’m getting really anxious today.

“You PROMISED! Look at how crappy it’s turned out for you the other 2 times?”

I know but this feels different.

“It could just be the progesterone. It’s probably just the progesterone”

Yes. Possibly. Fine. God you’re an ass.

I remove the tests from my cart somewhere around kids toys. I then wander over to the baby section. The section of Target I always have avoided. I think for a minute, what it would be like to actually BE pregnant and be able to justifiably buy these items. I move on to another aisle.

The conversation continues:

“No you are not buying those! I’m not kidding. NO!”

Ok but the results aren’t going to change if I test early or not.

“No but you will wreck this peaceful happiness bubble of insulation you’ve worked so hard to create around yourself if you test early. Look how well you did at acupuncture yesterday. You didn’t whine or cry or act like a maniac. For Once.”

“You’re 11 days into all the meds, you are doing well. Don’t ruin it”

Always fighting between the logical and possibly insane me.

La Bamba

My body is sensitive to the medications given for IVF. I become a crazy person on Clomid. I cry easily and often on Estrace and Provera, I can feel follicles growing on Menopur. All of them make my lower back hurt. I don’t know why, but I’ve learned to deal with it.

A full 9 days into the progesterone, the Estrace, and the progesterone in oil shots, my lower back is aching. It’s 3dp6dt and I feel good, as in I’m happy to be thinking I could am pregnant until proven otherwise. Other than a bloated rumbly feeling in my stomach, I’m doing fine. Except it feels like my transfer was eons ago already. How can it only be 3 days?

Maybe its midterms, or that I’ve been busy with lots of other things. My stepdaughter took her SAT’s today. She’s been taking PSAT classes since the summer she finished the 7th grade and she’s now a Junior and 16 years old. I didn’t think it was a good idea either, but her mother is one of those Tiger Mom women, where nothing she does is ever good enough. Don’t get me started. So Stepdaughter is upstairs sleeping it off.

I haven’t been sleeping that well, my mind is restless and uneasy.Which I’m a little worried about. I wanted to meditate today but some our neighbors across the street are having a Mariachi band on their front lawn this evening, as well as a party. Ugh. Not. A. Fan. I have half a mind to blast Leonard Cohen and just base boom them out, but our neighbors to the left of us already hate me so I don’t need to make anymore enemies.

My husband keeps talking to my little goldfish before we go to sleep “You are wanted little Jinyu, and you have been extremely expensive, in fact I could have had a brand new expensive car, so swim, and grow and become a little person.” Which I find to be weird, and sort of charming. I do have to admit, I laugh when he’s said it.

OMG they are starting to sing La Bamba, which is intolerable. I might start blasting to Foo Fighters. The last thing I need is La Bamba as an earworm. If I have just given it to you as one? Well then my work here is done.

 
You’re Welcome.